What is Tourette's Syndrome?

  • Tourette’s syndrome is a neurological condition (affecting the brain and nervous system), characterised by a combination of involuntary noises and movements called tics.
  • Tics may be vocal (sounds such as grunting, coughing or shouting out words) or physical (movements such as jerking of the head or jumping up and down).
  • They can also be simple (making a small movement or uttering a single sound) or complex (making a series of physical movements or speaking a long phrase).
  • Most people diagnosed with Tourette’s syndrome have a combination of physical and vocal tics, which can be both simple and complex.
  • The tics don't usually pose a serious threat to a person's overall health, although physical tics, such as jerking of the head, can often be painful. However, children and adults with Tourette’s syndrome may experience associated problems, such as social isolation, embarrassment and low self-esteem.
  • Children with Tourette’s syndrome will usually also have one or more other developmental or behavioural conditions.
  • The two most commonly reported conditions are:
    • obsessive compulsive disorder (OCD) – a condition characterised by unwanted persistent obsessive thoughts and useless compulsive behaviour, for example, a compulsion to keep washing your hands due to a fear of catching a serious illness
    • attention deficit hyperactivity disorder (ADHD) – a behavioural condition with symptoms such as a short attention span, being easily distracted, a tendency to be impulsive and not being able to sit still because you are constantly fidgeting (hyperactivity)
  • Children with Tourette’s syndrome may also have other behavioural problems, such as flying into a sudden rage, or behaving inappropriately or anti-socially with other children.
  • In many cases, these associated conditions and behavioural problems can be more disruptive and troublesome than the tics of Tourette’s syndrome, and are the main focus of treatment.

How To Manage Tourette's Syndrome

  • There's no cure for Tourette's syndrome, but treatment can help to control the symptoms.
  • If your child is diagnosed with Tourette's syndrome, their treatment plan may involve a type of psychological therapy, known as behavioural therapy.
  • Two types of behavioural therapy have been shown to reduce the impact and intensity of tics in some people. These are described below.
    • Habit reversal therapy – involves monitoring the pattern and frequency of the tics and identifying any sensations that trigger them. The next stage is to find an alternative, less noticeable method of relieving the sensations that cause a tic (known as premonitory sensations). This is known as a competing response.
    • Exposure with response prevention (ERP) –involves increasing exposure to the urge to tic to suppress the tic response for longer. This works on the theory that you get used to the feeling of needing to tic until the urge, and any related anxiety, weakens.
  • When the tics are more frequent or severe, medication can help to improve them, such as alpha2-adrenergic agonists, muscle relaxants and dopamine antagonists.
  • Surgery may be recommended in particularly severe cases that don't respond to treatment. However, surgery for Tourette's syndrome is rare.
  • In around two-thirds of cases of Tourette's syndrome, symptoms improve significantly (usually around 10 years after they started).
  • In many of these cases, medication or therapy will no longer be needed to control the person's tics. Some people's symptoms become less frequent and troublesome, or they disappear completely.

All information from NHS Choices